Welcome to my blog dedicated to my Journey with Teal....Ovarian Cancer. This blog is where I will make updates to my treatments and tests....hoping to keep blog friends updated and answer any questions from visitors. I did not pick this journey, but am doing the best I know how to walk strong and gracefully, with my Lord's continual strength!
Well, I did pretty good with the chemo this time. Even though I was concerned having it so close to Christmas day, we made it through. I am on a Clinical trial - a drug that is to keep the tumors from sending out feelers to spread and grow. I have very little side effects except for fatigue. That is true for just about any chemo drug I think! I wish I could get rid of this upper respitory issue. It starts to go away, and then comes back just like the first day. I am limited as to what OTC I can take.... Just praying that the next CT scan will show definately a significant improvement. I can stay on this medication open ended....which would be nice as long as it continues to work.
Continue to pray for Ashley. She is suffering the after effects from the stem-cell transplant. Poor girl has been ill for both her birthday and Christmas.
Everything went well with my infusion today. No blood draw problems...a blessing. Did not sleep well last evening because of the pre-med steroids....but I came home and slept 3 hours. So I feel much better. Getting ready for Christmas Eve. So glad I got things done when I did...I would be in trouble if I had running to do tomorrow. Going to see a friend in the morning, then Christmas Eve service tomorrow evening. Have a Merry Christmas!
Remember at my last doctor's appointment the news was not good. The clinical trial drug was not working and they were going to start me on a traditional chemo with a booster. I was to wait until I heard from them to tell me when to start. This past week has been difficult. Although I KNOW I am in God's hands, Christmas is an emotional time and full of memories....well, let's just say my poor hubs has put up with a lot of emotions from me. I get a phone call this morning from my doctor's office. Answering it, I hear MY DOCTOR. In my head I am thinking, oh, this can't be good. Well, long story short, the radiology center sent the wrong scan. They did not compare the most recent scan. THERE is STABILITY. NO NEW GROWTH. The drug is working. I don't understand totally why there was confusion. That will be found out more later....but, can you say Merry Christmas Ceekay???? So, tomorrow, I will be in the chemo chair. Getting the same trial for another 3 months. This time there should be some improvement. I just had to share! God is so good. I am sooooooo happy!
I have been asked why is the name of my cancer battle blog is Journey with Teal. Just as PINK is the color representing Breast Cancer - Ovarian Cancer has a color ribbon too...it is TEAL. Therefore, this is my journey through Ovarian Cancer, through TEAL.
Sometime in the future, I am going to post about how I found out I have the "Silent Killer". And how women are trusting in their PAP smears to tell them they are Cancer free, when they may not be.
I have been battling OC since October 2006. So I know something about it! But, I also do not KNOW EVERYTHING! I tell my doctors, I am on a NEED to KNOW basis only. Please do not overwhelm me with statistics. It is difficult enough to face the trouble of the day, without worrying about what might happen in the future.
This week has been a bit of a challenge emotionally for me. I am concerned about being without a treatment plan. I LOVE Christmas. I do not want Christmas 2009 to be my last. So even with the joy of Christmas, there is a bit of sadness. Balancing the emotions when one has a serious illness is a struggle.
I also have to deal with the fact that I just can't do what I want to do. Now see, here is the dilemma. I am fortunate in that I LOOK GOOD. Really, I do not look sick, my hair is thick and healthy, my eyes bright. But, unfortunately, I don't feel as good as I look. I am not sick. I just wear out more easily than I want to. So I try to push myself. But there is a limit to that too....those who KNOW me, understand why this is so frustrating to me.
But, as I said this blog is a journal to tell my journey....and the journey includes pulling myself up by the "bootstrings" and carrying on. Shed the tears, ask the whys, and then enjoy the day that the Lord has given me....
I did not get the Christmas present I so most wanted....a good scan. Although my recent CT was not "horrible" it was just worse enough to know that the current clinical trial I have been on for 3 months is not working for me. This seems to be a regular occurance in my fight. My husband always said I was stubborn...I guess this cancer is too. So, we will be starting the week after Christmas on another trial. Traditional chemo no longer is effective, but this new trial gives an "add on" drug to the chemo to amplify it's effectiveness...in theory! I am very healthy otherwise, which is a tremendous blessing....just want to keep it that way.
And my veins...nope, not a drop of blood out of those babies today. Had to go through the port.
I probably will not post again on this blog until I know more about when I will start the new drug therapy.
Again, I always want you to know how much I appreciate your love, concern and most importantly, your prayers.
I am so glad you came by for a visit. I am a wife, mother, grandma, and forever decorator of our home. I love to shop, craft, and have tea with friends. My life is interrupted by treatment for Ovarian cancer since 2006....but I enjoy each day. In November 2011 we purchased a 1978 mobile home and are renovating it for our enjoyment. No more mortgage!
Please visit my other blogs...My Journey with Teal - my cancer journey, and Thinkin' of Home, the JOYS of my life!